Well, it took me years to realize I have RLS. No doctor ever asked me, they treated me as a psychological problem. I discovered RLS and the name of the disease by googling my symptoms. And a short period later I helped my mother to recognize that she has RLS too. I have a more or less milder form, but nevertheless it stops me from sleeping well almost every night – if at all. Levodopa helps, but I try to not take it, because I do not want to get into the state to need the more powerful drugs – because they all have severe secondary effects.
So yes, I do understand the problems of commercial interests and pharmacological industries. But I also do insist that more public education about those little diseases are highly needed.